Care at the End of Life

Part I. Introduction

1. Care of People When They Face Death and Dying: Definitions, International Context and the Development of Research
Louise Jones

Part II. Methodological Challenges in Researching Patients at the End of Life

2. The Application of Economic Evaluation Techniques to Studies of Palliative and End-of-Life Care
Bridget M. Johnston

3. The Role of the Health Economist in the Evaluation and Development of Complex Interventions in End-of-Life Care
Rachael Maree Hunter

4. Retrospective Analyses of End-of-Life Care Using Large Data Sets
Martin Bardsley

5. Preference Elicitation at the End of Life
Terry N. Flynn, Charlie Corke, Elisabeth Huynh

6. An Introduction to Handling Missing Data in Health Economic Evaluations
Gianluca Baio, Baptiste Leurent

Part III. Measuring and Valuing Outcomes

7. Measuring and Valuing Outcomes for Care at the End of Life: The Capability Approach
Joanna Coast, Cara Bailey, Alastair Canaway, Philip Kinghorn

8. Identifying Objects of Value at the End of Life
Christopher J. Sampson

9. Life at a Premium: Considering an End-of-Life Premium in Value-Based Reimbursement
Christopher McCabe, Mike Paulden, James O’Mahony, Richard Edlin, Anthony Culyer

10. Eliciting Societal Views on the Value of Life-Extending Treatments Using Q Methodology
Rohan Deogaonkar, Rachel Baker, Helen Mason, Neil McHugh, Marissa Collins

Part IV. End of Life Care and Society

11. Does Society Place Special Value on End of Life Treatments?
Koonal Shah

12. What About Informal Carers and Families?
Claire Hulme, Fiona Carmichael, David Meads

13. Measuring and Valuing Health-Related Quality of Life in Children with Terminal and Life-Limiting Illness
Katherine Stevens, Jeff Round

14. Living Up to a Good Death: Complexities and Constraints in End of Life Choices
Jeff Round, Henry Llewellyn

Nyckelord: Economics, Health Economics