Solbakk, Jan Helge

The Ethics of Research Biobanking

Solbakk, Jan Helge - The Ethics of Research Biobanking, ebook


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ISBN: 9780387938721
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Table of contents

2. Consent to Biobank Research: One Size Fits All?
Bjørn Hofmann, Jan Helge Solbakk, Søren Holm

3. What No One Knows Cannot Hurt You: The Limits of Informed Consent in the
Emerging World of Biobanking
Arthur L. Caplan

4. Users and Uses of the Biopolitics of Consent: A Study of DNA Banks
Pascal Ducournau, Anne Cambon-Thomsen

5. Information Rights on the Edge of Ignorance
Anne Maria Skrikerud

6. The Dubious Uniqueness of Genetic Information
Anne Maria Skrikerud

7. Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy
Lars Øystein Ursin

8. Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition
Lynn G. Dressler

9. Biobanks and Our Common Good
Erik Christensen

10. Trust, Distrust and Co-production:The Relationship Between Research Biobanks and Donors
Pascal Ducournau, Roger Strand

11. Scientific Citizenship, Benefit, and Protection in Population-Based Research
Vilhjálmur Árnason

12. Mapping the Language of Research Biobanking: An Analogical Approach
Bjørn Hofmann, Jan Helge Solbakk, Søren Holm

13. The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking
Bjørn Hofmann, Jan Helge Solbakk, Søren Holm

14. The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use
Laurie Zoloth

15. The Art of Biocollections
Anne Hambro Alnæs

16. The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good
Lars Øystein Ursin, Berge Solberg

17. Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment
Klaus Hoeyer

18. Conscription to Biobank Research?
Søren Holm, Bjørn Hofmann, Jan Helge Solbakk

19. Ownership Rights in Research Biobanks: Do We Need a New Kind of ‘Biological Property’?
Paula Lobato Faria

20. Legal Challenges and Strategies in the Regulation of Research Biobanking
Elisabeth Rynning

21. Annexation of Life: The Biopolitics of Industrial Biology
Jan Reinert Karlsen, Roger Strand

22. In the Ruins of Babel: Should Biobank Regulations be Harmonized?
Jan Reinert Karlsen, Jan Helge Solbakk, Roger Strand

Keywords: Medicine & Public Health, Theory of Medicine/Bioethics, Medicine/Public Health, general, Human Genetics, Cell Biology, Epidemiology

Publication year
Medicine, Health Care, Mode

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